About Us
Our Vision:
The Cystic Fibrosis Consortium is dedicated to educating CF care providers to promote evidence-based, high-quality care to individuals living with CF
Our Mission:
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Promote networking and sharing of resources
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Increase knowledge of evidence-based practices in cystic fibrosis
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Advance skills in leadership, professional presentations, research, delivery of care, clinical skills and education practices
How We Started
History of the Consortium
The consortium had its beginnings in 1990s as a way for the 6 CF centers in Ohio to connect and collaborate. Through the years that group evolved and large group meetings dissolved, but Ohio RD meetings continued (OH RDs continue to meet annually).
The evolution of the CF RD SW Consortium:
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Ohio CF Center consortium
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Ohio CF RD consortium
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Midwest CF RD consortium (50 attendees) in Chicago
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Midwest CF RD and SW consortium
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CF RD and SW consortium
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CF RD and SW North American consortium (Canadian attendees)
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Expanded to 155 registrants
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First Aussie attendee!
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COVID delay x 2 years, but we’re back!
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2022 marks the first year the the CF Dietitian and Social Work Consortium is a stand-alone non-profit entity.
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2023 marks our first year offering 'advanced nutrition' class to nutrition mentors
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2023: Offered advanced credentialing to qualified RDs working in CF
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Began inviting GIs to annual meeting
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2026: Offered SW advanced credentialing to qualified SWs working in CF
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Changed name to reflect the CF multidisciplinary care model
Board Members
Terri Schindler MS, RDN, LD, CACFD
Kimberly Altman MS, RD, CDN, CACFD
Marci Johnson MSW, LISW-S
Shari Willy MPH, RD, LDE, LD, CACFD
Aimee Goyette MPH, RD, CDCES, CACFD
Board Members
Terri Schindler
Board Chair
I live in Ohio and have been working in CF for over 30 years at 3 different CF centers.
I have an adult daughter who has CF. She has (behind the scenes) helped me at the consortium meeting each year. She has taught me courage and strength; I am always
learning from her as well as others with CF and their families. I am also very grateful for the amazing, supportive CF community and enjoy working with a team of experts.
I love animals and have been volunteering, walking dogs awaiting homes, for over 8 years at the local dog shelter.
Things I love: learning new things, reading, meditation, traveling, and meeting new people. I am fascinated by hypnosis and have taken basic training. My most recent interests are fermentation and food preservation.
Things I dislike: mushrooms, sour cream, and cilantro.
Aimee Goyette
Chair Elect
Aimee is a registered dietitian who has spent 16 years working in CF care. She also has a background in diabetes and public health, which helps her look at nutrition from both a clinical and big-picture perspective. She loves teaching and enjoys helping individuals and families feel more confident and comfortable managing their health. When she is not working, you can usually find her spending time with her family or curled up with one of the pets and a good book.
Kim Altman
Board Member
I was born and raised in New York and have spent most of my life in the Northeast. I have worked with individuals with CF since becoming a dietitian 26 years ago, gaining experience at multiple pediatric and adult CF centers in New Jersey, Boston, and, most recently, spending 16 years at a CF Center in New York City. I am now starting a new chapter in my career and will be joining the Children's Hospital of Philadelphia's CF Center in late August 2026.
I have been highly involved with the Greater NY Chapter of the CFF, participating in most local events and serving as a board member. I look forward to continuing this advocacy and partnership in my new city. Additionally, I serve as a mentor for the CFF nutrition mentoring program and recently passed the torch as a facilitator.
Outside of work, I love to bake, though I usually need to share the treats so I don’t eat them all myself. I also rescued my dog, Reagan, in November 2020 and can’t imagine not coming home to her wagging tail and cuddles!
Shari Willy
Board Member
Shari Willy is a registered dietitian with greater than twenty-five years of experience as a nutrition professional. With over fifteen years dedicated to the care of people with cystic fibrosis, Shari has worked with both adult and pediatric patients and their families. Currently, she is the coordinator and dietitian in a pediatric care center. Additionally, Shari volunteers with the Kentucky/West Virginia Cystic Fibrosis Foundation as chair of the board and committee chair for the annual gala. She maintains education, advocacy, and matters of public health as guiding principles for her career and philanthropy pursuits.
Shari resides in Louisville, Kentucky with her husband and son. A very fluffy cat and an athletic dog round out the household. She enjoys an active lifestyle with traveling, hiking, cycling, and pickleball as favorite hobbies. Shari is always up for a fancy party, bourbon tasting, and cheering her Purdue Boilermakers to victory.
Marci Johnson
Board Member
Hi! My name is Marci Johnson and I am a Licensed Independent Social Worker. I work as the Mental Health Coordinator at Nationwide Children’s Hospital. I have been working with the CF Population for past 5 years. Prior to my current role, I worked as a medical social worker and also in behavioral health for several years. I currently co- facilitate a Peer Consultation Group with the CFF. I also am involved with my hospital’s APAN (Asian Pacific American Network) group at the hospital.
I have lived in the Columbus, Ohio area my whole life but love to explore new places and love to meet new people. In my personal time- I love to bake, spend time with my family, especially my nephews, and read. I love to spend time with others, but also value some quiet time for self care. I strongly advocate for mental health and a strong work/life balance.